On Friday we got back Steve’s mid-body scan result. Everything looked very good. No nasty lymph nodes detected. Good news really although the doctors still couldn’t give us a sure answer to the cause.
Since nothing was happening over the weekend Steve begged to go home to Sarahs. The doctors agreed but made sure Steve was aware that he was still an in-patient and that he had to be back in his hospital bed first thing Monday for a spinal MRI scan and the doctors round.
It was wonderful having him home at Sarahs. We had a lovely time with the family and also enjoyed having our own private time and proper cuddles. On Sunday, our friends Brian and Janine who lived about an hour out of Melbourne came to visit. They are the friends who with their two teenage children Ben and Holly joined us aboard Dignity in Fiji last September. Steve really appreciated the visit and although tired felt lifted by the visit.
We checked ourselves back into the hospital ward early this morning and the testing soon started. More blood samples were taken and Steve had a long MRI scan done of his spine. The scan took almost two hours.
The doctors came to see us midday to update us on some protein result and the direction they are looking into. They have more or less ruled out lymphoma cancer which is really good news. They said the protein result they received supports MS but they are not 100% sure as this result can still be cause by other problems. They continue to look at bacterial/virus hence the extra blood samples taken earlier. They are waiting for another blood result which should come back in a day or two that could help towards identifying MS if he has it. The spinal MRI scan could also help towards identifying MS and we should have the results tomorrow.
I believe our wait is nearing its end.
Hi, fantastic with the lymphoma results. The Aussie medical group need a pat on the back for their thorough investigations. The waiting is the hardest but at least you managed to get Steve back to Sarah’s for the weekend. I only got Robin out for 2 evenings during his 11 night stay as he had to have 6 hourly intravenous drugs so his parole was very limited. Still thinking of you and positive that all will be sorted out and you will know what lies in store. Erin xx
good news on the lymphoma front, steve must be going up the wall not being able to do anything.
cant be a bed of roses for you, helen, either.
hope all the tests etc ends well for you,
thinking of you both.
mick and nicky
Cigutera is often mistaken for ms and has alot of the
same symptoms. 2 people can eat the same fish one gets
cigutera and the other doesnt. hopefully they have checked
for this.sorry to see you go through all this. hope all is
well soon.
Mike’s comment is interesting. Cigutera would have to be definitively ruled out. It is indeed a strange disease from the little I know. Hope all is well soon.
Happy to read that no nasty lymph nodes were detected and glad you had a weekend together away from the hospital. Thinking of you both, take care. J&J
Glad to here about Steve’s results and that the Doctors are going down all the possible avenues. Things are looking more positive by the day with regards to Steve’s health and outcome. Remain positive.
Thinking of you all.
Kind Regards
Gordon
Thinking of you. Did you catch/eat any fish en-route to Fiji? Normally cigutera would be associated a reef fish I think, but it’s worth mentioning.
Chin up. At least there was some positive news.