The waiting did not end.
On Tuesday after looking at the results of the spinal and brain MRI, the senior consultant did not feel convinced that it was MS. He said that the type of lesions/abnormalities seen in his brain were very unusual and rarely seen. There were elements of MS but more as well. He wanted to study the scans further, get a couple of second opinions and talk further with the infectious disease doctors. He was reluctant to give Steve any steroid type treatment as it might just mask the real cause. He also ordered another brain MRI to check if there were changes in the abnormalities i.e if it’s getting worse or stable.
On Wednesday, Steve had another brain MRI and a test called a Visual Evoked Potential. One of the infectious disease result came back negative.
Yesterday (Thursday) was Steve’s birthday. For a birthday present we were hoping for some positive results. Mid morning our senior consultant, the head neurosurgeon and about ten member of the team (no exaggeration) turned up. The MRI showed that Steve’s lesions are getting worse and they wanted to do brain biopsy straight away. So yesterday afternoon Steve went down for his brain biopsy.
The operation went very well. They were able to get a good sample for biopsy in a safe area of the brain, very near the surface, so the intrusion was minimal.
In recovery I asked Steve how he was feeling and he said “really shitty” so I knew he was OK. He was very lucid, thirsty, hungry and wanting to wee, all good sign. I left him last night after his pain medication to get a good night sleep. I got a good night sleep too.
This time I think the waiting is almost over.
There are ‘positive vibes’ coming from all round the World Helen. I can’t say for sure that that’s any real help, but please tell Steve that a great many people are willing him well.
Don’t forget to look after yourself, that’s also important.
Wow – a birthday to remember all right! Shame they have not go a diagnosis yet but it is getting closer it seems. Still thinking of you all and fingers crossed that they come to a conclusion soon. Erin x
Hey Southwoods. Keeping you all in my thoughts everyday. Sounds like the love is flowing in this situation, and rightly so, its supreme. Give Sammy boy a hug for me.
Much Love.
Thinking of you from a cold damp English summer ….stay positive. love Chris and Lorraine
Hi guys just caught up with whats happening and want to send you both our thoughts and wishes. The kids are all hanging out to play X Box with you again so you better practice when you can I think they are getting better!! Big hugs from the Div 11 crew.
It must be SO hard waiting but hang in there, you’re nearly there and what a team of Drs and specialists you have. Must be a bit of comfort feeling that he is getting the best of care. Our thoughts and prayers are with you. Love and hugs
hi southwoods, you are in my thoughts. wishing the best for a well return of steve to his rightful helm. xxoo
Thinking of you both, we know how hard it is to wait for results, we wish you our very best, couldn’t help thinking about your birthday aboard dignity with Helen’s red lipstick, what a fun night it was.????
Love and hugs from us both.xxoo
Dear Helen, I can’t find your email, hope this message reaches you. I am in the UK going back and forth to Amersham, would love to pop in and see you?