Some Frustration, Some Joy, Some History

Frustrations :

• I’m not going home today.  An infection disease doctor is supposed to visit sometime to work how to get me off intravenous drugs each day.  Also docs may have overlooked planned chemo treatment for my liver (HLH) syndrome which I’m on right now.  Liver functions are really solid from the daily blood tests and I it’s been a while since I’ve been the yellow monster.

  I am fed up and getting shirty.  I don’t want to spend the weekend here waiting.  I wan’t to go home or get on with my broader lymphoma chemo.  Better still.  Send me home on Friday and bring me back end of next week.

• The insurance company has been frsutrating me with their poor offerings.  While writing this this may be turning into joy.  The company tasked with finding a replacement called to say they have found one but can’t source it themselves and want to ask the insurance company to give us a check.  The amount they are recommending is acceptable so stirrings of joy.  They said they’d send an email but I haven’t received it yet so frustrations linger.  Cash is king as it allows us to retech a different way.  When I ordered the laptop which was stolen our needs were different so we can use the money differently.  Rather than pay for a power laptop it looks better to get a lightweight one, a pad and a desktop for our new home.

Joy :

• Potential joy if the laptop insurance works out.
• New vacuum cleaner has arrived at Betty’s.  Not a big deal but it’s been ordered early so we can use to tidy up flat before we leave.  Brings some solidity to the idea we’re moving into a new home soon.
• I have been informed our new TV is being delivered.  Joy.  If I use the consignment reference given it is not listed.  Frustration.  Would be nice if it arrives tomorrow AND I AM LET HOME FOR THE WEEKEND.
• I feel good.  My weight is returning.  SEND ME HOME.  (Get the idea)

Some History :

• Helen and I visited the nearby Petrie Museum of Egyptian Archaeology hidden away in the vast University College of London Campus. It was a pleasant distraction from the hospital which, incidentally, I WANT TO GET AWAY FROM.

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Incidentally, some people have for a long time been unable to view pictures. For them I have set up an alternate which I hope works. If you’re one of these people please click on the link above where it says “Click to see Pictures”. If this works it will be a regular feature. In time I will seek a better answer.