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Bristol Rose « Aboard Dignity (Lagoon 420) Blog

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Family Get Together

We didn’t have to wait long until Penne, Ella and Bao arrived. It was really good to see the three generations of ladies again – the last time we saw them was back in February. Ella is son John’s partner. She was aboard Dignity with us in Costa Rica. Bao is her daughter and our granddaughter. Penne is Ella’s mum. We love them all.

Considering Ella and Bao had just travelled from the UK and neither had had much sleep, both were very well behaved. Bao was quite keen to show us her standing skills as can be seen in the pic to the right. Helen and I performed our grandparenting skills well. Helen gooed all over Bao while I fixed the car baby seat.

They were able to stay with us for a couple of hours before tiredness began to kick in. Penne then adroitly drove them back to their home up the sunshine coast north of Brisbane.

In the afternoon Pam and John from Passages popped by for our final, final goodbyes. Hugs and kisses all round. John is going to keep an eye on the work on Dignity this week and hopefully take some pictures of the work being carried out.

Around 4pm Trish came to give us a ride to the airport. It’s fantastic having all this support from our friends and we really appreciate this. We obviously chatted about our family reunion earlier in the day. We never had time to visit their new home but hope to do so during our next visit to Brisbane.

Watch out for another entry very soon. Had two rounds of radiotherapy so far. Plenty of pics to show.

Possibly the last time on the move

Our boxes were picked up slightly earlier than we planned so we were all done by 8:30. John from Passages came over at 9:30 to be on the boat to take her over to the maintenance yard. As it turned out, the wind kicked up a stink and we were unable to move the boat on Tuesday. As ever, this turned out to be good for us as it kept us close to town for the day. It also allowed Helen and I to pop over to Passages to say goodbye to Pam. There’s a chance we’ll see her today but we’d prefer to say goodbye twice rather than not at all. They are flying to Asia next week so it’s a full goodbye for us all.

Sam returned from his Greenpeace training yesterday (he has a job there) and we spent most of the afternoon and evening together having dinner aboard together. In the evening we also managed to sell our sea anchor which is only of interest to planners of long passages. We’re particular pleased as most of the folks here are coastal sailors and hence less likely to be interested in it.

At 6:15 this morning (Wednesday) Jason from the shipwrights dinghied over to help us come over to the yard. At that time of the morning the wind was light. John from Passages joined us for the very short (<1km) motor over to the yard. It was a very mixed experience for Helen and I as this was the first time we've been able to move the boat since we left it in Fiji back in June. All the feelings of being off on adventure came back but offset by the sad feeling that this could be our last trip on Dignity. We are now tied up to the yard dock and work will soon begin on Dignity. Measurements for the mast compression pole fix have been taken and I believe the new metal is now being made up. Ella, granddaughter Bau and Penne (Ella's mum) are hopefully on their way from the airport and we're looking forward to seeing them all soon. Rob and Trish popped by for Rob to say goodbye to us. We'll see Trish later as she's offered to take us to the airport.

Keeping on going

Ok, so I thought we were slowing down but we’ve since sped up a bit.

On Sunday morning we were visited by nephew Owen, his wife Cynthia and daughter Tabatha. They live in the area and it was good to be able to spend some time with them. We’ve not seen Owen for many years, the last time being in the UK back in the 90s. During their visit we managed to sell off another boat item and later in the day sold yet another.

On Sunday evening Pam on Passages cooked us dinner and we stayed chatting with her and John for some time. John offered to keep an eye on Dignity this week as a lot of the repairs are going to happen. This will be a great help as John is very knowledgable and it can only be positive if the trades folk know someone is overseeing them.

Monday started off with a nice long Skype chat with older son John and granddaughter Bau. It was John’s birthday so it was a good excuse. The day was incredibly busy. Helen more or less completed all the packing while I did the paperwork. Helen even did all the package moving to the office as I don’t yet have the strength for all this. In the afternoon we were visited by more prospective buyers for the boat. It seems we’re getting a lot of interest now. As Helen pointed out a couple of months ago, the demasting is turning out to be a good thing. With the hull unaffected the upshot is Dignity will have brand new and locally warranted rig and sails coupled with almost nearly new motors which are also still under warranty. This sets her apart from the competition.

Monday evening we were picked up by Trish and Rob from Bristol Rose and we all went out for a curry dinner. As ever it was really nice to see and spend some time with them. Afterwards it was time to Skype solicitors (lawyers) in the UK to follow up on things. We settled down to watch a show on the laptop but both of us fell asleep almost straight away.

It is now Tuesday morning. Our 10 boxes and 1 case will soon be picked up and begin their long journey to the UK. Whatever else we find will have to go in our luggage. Then we call the shipwrights who will come over and we’ll move the boat over to the Royal Queensland maintenance dock where the repaired s/s will be refitted, the mast compression pole rewelded and the few gelcoat spots of damage repaired. On Thursday the new mast will be stepped. I’m assuming that Dignity will be moved back to her current berth on Friday.

Unfortunately we won’t get to see the mast fitting as we have to return to Melbourne tomorrow evening for the start of my radiotherapy on Thursday. I have 20 sessions planned, each of which will include whole brain radiotherapy and radiotherapy on my spine. Hopefully my bone marrow won’t be too badly affected. If it is, my stem cells are standing by. The radiotherapy will take 4 weeks so we can’t have any long trips back to the boat at least until late October.

Last few days in Brisbane – for now

We’re now just a few hours from heading back to Brisbane Airport to fly back to Melbourne.

The last few days have been very much the same as previous. We’ve had some fantastic blue sky weather with some more windy days. Today is a bit cooler which will help us acclimatize for the Melbourne chill.

We’ve had a bit of luck in that we managed to sell our Hookah via the Gumtree ad. The buyer was only a couple of minutes away which meant we didn’t have enough time to check it out. I warned the buyer of this and that it might be hard to start as we’ve not used it since this time last year. As it turned out it started first time. It’s never done that cold before.

We’ve also done something that we’ve not done in three years. Helen has cut my hair. I had been thinking about my return to work and that I had to get my hair cut for that. I didn’t want to have a white pasty head so I wanted to get my hair cut short while we’re still in the sun. Helen also pointed out that the radiotherapy could result in my hair falling out and that it would be far better if my hair was short for that. It didn’t drop out during chemo but it did go a bit funny and I was getting fed up with blowing around. For a brief moment I felt sadly nostalgic as the long hair was totally associated with our boating life. But getting my hair cut is about preparing and fighting for the future. I felt quite positive. We have some before and after pics which I’ll post from Melbourne.

Last night we joined Pam and John from Passages for the last time – perhaps. They’re flying off to the Far East at the end of this month and we may not be back before they depart. We were all keen on having a light evening but you can guess where this is going. We started off on their boat for some wine. Next we went to the marina club house for burgers and beer. Back on Dignity was had a bit more wine and then polished off the brandy. Well – it’s our last night so it’s ok isn’t it?

Trish has offered to take us to the airport tonight which will be nice.

Tomorrow we’re visiting the radiology consultant and Prof Opat the haematology consultant again. I have put quite a few more hours into my research and learned a lot since last week. I’m practically certain the radiotherapy is the right thing to do especially as they’re talking about using the reduced dose therapy. I’ve found the study online and the results were good. The reduced dose has no negative effect on outcome and the side effects are practically non-existent. The overall survival rate (ie. most of them have) is the best I’ve seen for my condition. Very encouraging.

I have continued to feel well and needing only normal hours sleep. I’m still a bit offset to Helen getting sleepy hours after her and her waking first. I really have no idea how the next rounds of treatment will affect my wellbeing. A lot of the information I have found about the radiotherapy talks more about the hardship of the preceding chemo. I’ve come through that pretty well so maybe this next phase won’t be too hard. We’ll know more soon.

It’s a strange life

We’ve been back on the boat for a few days now and we’re experiencing a strange sort of ‘between worlds’ existence.

Dignity is very much our home and we both feel really good being aboard. With some cruising friends nearby and being amongst so many boats we even have times when it feels like ‘old’ times. On the other hand repairs now progress and people are in and out of the boat reminding us of the challenging passage to Australia and what we still have ahead. At the same time we know I’m mid treatment and the Melbourne experience beckons.

A brief update on my own health. I’m feeling better than ever (at least since May). Certain capabilities I’ve not been able to do have returned. I won’t mention them all but one is enjoying more than a sip of wine in the evenings. Helen is both pleased and not so pleased about this return to health. I still feel like I’m walking around on Jelly legs and each day after I’ve done some exercise leaves me with aching legs. It’s all good though. I’m also need less sleep than before. I’ve been regularly out for 11-12 hours per night and sometimes needing a nap during the day too. Last night, for instance, I was up until 1am and was awake 7 hours later. I’m pretty sure a lot of this is due to having time away from chemo.

Tuesday was eventful insofar as we finally saw our first tranche of insurance money arrive. Unfortunately there was not the best communication between underwriter, insurer and ourselves resulting in our getting a little less than expected. Overall this is not an issue but it takes time to work around these things. Nevertheless I was able to begin paying some deposit money and get folks into action.

With improving weather we set about boat work. There’s so much to do. Helen has begun packing stuff for eventual shipment while I have taken on the local sales role for things we don’t need to keep ourselves or leave on the boat. Tuesday resulted in colour ads for some of our items.

In the evening we had Pam and John from Passages and Trish and Rob from Bristol Rose over for dinner. I enjoyed the dinner AND the wine.

On the subject of weather it really turned nice this week although a bit windy at times. Rarely a cloud in the sky we’ve been able to heat our water off solar and wind as well as run the fridge, lights and TV in the evenings. Fantastic. I’m glad I rewired the electrics a way back so that the immersion heater could run off the main inverter.

Wednesday saw much of the same during the day. The shipwrights came round and removed all the bent stainless steel so it could be worked on at their work shop nearby. On removing ceiling panels to remove the mast base we discovered damage to the top of the mast compression pole. I took pictures and sent them off to the insurer/underwriter who responded most positively. In fact, an earlier email with them to detail costs incurred during delivery resulting from the demasting resulted in them deciding to pay us more. Never expected that. I believe this is due to them appreciating the efforts we’ve been to to keep costs down. Much of this credit goes to Helen while I was out of play.

In the morning Trish took Helen out to shop further away than Manly. I managed to get my tools out and repair a small electrical fault with the windlass control. This again felt a bit like old times.

In the evening Trish and Rob met us. First to look at and eventually agree to buy our kayak. (Someone has since called and been very disappointed we’ve already sold it). Next they gave us a ride to and joined us at a nice fish and chip cafe beyond walking distance. We were able to sit outside with our own wine and eat very tasty F&C. We were the only ones there practically and we sat there for about 2 hours chatting away. The usual boat crap of course but we loved it.

We did have a discussion about my treatment and prospects. Trish pointed out how different I was to when she first saw me when we were first here. Then I was between chemos 4 & 5 suffering from a constant nasty headache. We had to point out that even then I was vastly better than at the start of chemo or even when we first arrived in Australia.

Thursday morning I spent some time putting together some of the online medical materials we’ve found on line in preparation for the meetings we’ll have with the specialists next week. I’ve begun highlighting key points and this process will help generate the questions we need to ask which we’ll document so as not to forget.

I’ve also put quite a few items on GumTree. Hopefully we’ll get some action. This took a lot more time than I expected.

Helen has continued to be extremely busy sorting things out around the boat. The shipwrights returned to remove the compression pole discovered faulty the previous day. This turned out to be extremely difficult. Everything else has come off really easily as access to the mounts was readily available. While we had access to the whole support and it was movable, the pressure between top and bottom as well as the size of access proved too difficult. Work has suspended while we seek advice from Lagoon. A plan B is ready in case the pole can’t be easily removed.

Sam has been pretty busy and we often don’t see him. He now has full time work (sometimes until the early hours) in Brisbane and more options in the pipeline. We’re pleased for him in this sense. He always planned to do this but we do feel sorry for him as he just didn’t get the trip on the boat we’d all expected equivalent to what his older brothers experienced.