The waiting did not end. <\/p>\n

On Tuesday after looking at the results of the spinal and brain MRI, the senior consultant did not feel convinced that it was MS. He said that the type of lesions\/abnormalities seen in his brain were very unusual and rarely seen. There were elements of MS but more as well. He wanted to study the scans further, get a couple of second opinions and talk further with the infectious disease doctors. He was reluctant to give Steve any steroid type treatment as it might just mask the real cause. He also ordered another brain MRI to check if there were changes in the abnormalities i.e if it\u2019s getting worse or stable.<\/p>\n

On Wednesday, Steve had another brain MRI and a test called a Visual Evoked Potential. One of the infectious disease result came back negative.<\/p>\n

Yesterday (Thursday) was Steve’s birthday. For a birthday present we were hoping for some positive results. Mid morning our senior consultant, the head neurosurgeon and about ten member of the team (no exaggeration) turned up. The MRI showed that Steve’s lesions are getting worse and they wanted to do brain biopsy straight away. So yesterday afternoon Steve went down for his brain biopsy. <\/p>\n

The operation went very well. They were able to get a good sample for biopsy in a safe area of the brain, very near the surface, so the intrusion was minimal. <\/p>\n

In recovery I asked Steve how he was feeling and he said “really shitty” so I knew he was OK. He was very lucid, thirsty, hungry and wanting to wee, all good sign. I left him last night after his pain medication to get a good night sleep. I got a good night sleep too.<\/p>\n

This time I think the waiting is almost over.<\/p>\n","protected":false},"excerpt":{"rendered":"

The waiting did not end. <\/p>\n

On Tuesday after looking at the results of the spinal and brain MRI, the senior consultant did not feel convinced that it was MS. He said that the type of lesions\/abnormalities seen in his brain were very unusual and rarely seen. There were elements of MS but more as […]<\/p>\n","protected":false},"author":81,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[215,1],"tags":[],"class_list":["post-5844","post","type-post","status-publish","format-standard","hentry","category-australia","category-uncategorized","odd"],"_links":{"self":[{"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=\/wp\/v2\/posts\/5844","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=\/wp\/v2\/users\/81"}],"replies":[{"embeddable":true,"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5844"}],"version-history":[{"count":2,"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=\/wp\/v2\/posts\/5844\/revisions"}],"predecessor-version":[{"id":5864,"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=\/wp\/v2\/posts\/5844\/revisions\/5864"}],"wp:attachment":[{"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5844"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=5844"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aboarddignity.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=5844"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}