Monthly Archives: July 2013

Steve had a seizure/fit last Sunday at home. I called emergency and he was taken by ambulance to Stoke Mandeville our local A&E hospital. He stabilized quickly but was left confused and appeared to have no memory of recent events. … Continue reading →

And happy with it. The place looks enormous after my hospital room. The new TV has exceeded our expectations and we haven’t tried everything out yet nor ran it with decent internet connectivity (which will have to wait). We did … Continue reading →

Everything is now geared for my return home late afternoon. The drug schedule is running another 30 mins early so we could be away by 5pm. We have had a vaste bag of drugs given to take at home and … Continue reading →

In the space of the last hour or so there has been much news.  Much of it from a very long chat with the Prof. I can be moved to oral treatment for my fungal infection but this requires a … Continue reading →

Frustrations : I’m not going home today.  An infection disease doctor is supposed to visit sometime to work how to get me off intravenous drugs each day.  Also docs may have overlooked planned chemo treatment for my liver (HLH) syndrome … Continue reading →