One thing I forgot to mention last blog as it was late news for us too. The Prof had noticed declining white blood cell counts and ordered a bone marrow exam. This I had, had, had, had yesterday. I repeat this for ‘good’ reason. The first person to try failed on her very painful first go. She had a second go promising to get a doctor if she failed a second time. Rather than following her second failure by getting someone more competent she had a third go and failed that too. Each time I was having anesthesia injected in the skin and bone which was very painful. Third time unlucky she finally gave up and fetched the registrar who did a much better job in terms of less pain and successful biopsy. We were then told to rest and wait 30 mins and someone would come and see us. 45 minutes later Helen went off looking for someone and eventually found someone to superficially check on us and send us on our way. I complained in writing today as this is not the treatment we’d expect at a private hospital. Far worse than the same operation I had in Australia which was painless and quick.
Today, although feeling I’ve been run over by a bus we did go out to see a house in Chesham.
It was really nice but a little too big for the two of us and certainly too big if Helen has to stay somewhere on her own.
The pace has certainly gone out of our house hunt but deep down we both want somewhere to really call our own. That bungalow we first saw in Chesham is still on the market.
We may back and see that a second time. Lovely house but not the ideal location. We’re not caring so much about the latter at the moment.
Thanks to everyone for all your great messages of support. Helen and I were both upset to hear the news of relapse but had expected it. In a lot of ways we feel better knowing the ball is rolling. Results from the brain biopsy analysis, skin specialist and hip biopsy, biopsy, biopsy, biopsy should be in soon and we’ll hopefully be in a position to start treatment soon.
People who met you in Australia ( if oly briefley ) wish you well. An amazing story.
Cheers, Bruce.
Thinking of you both … x
Keep up with the positive thoughts, do hope we might be able to catch up with you, we are visiting the grandchildren this English summer , instead of sailing to the pacific on Ivory quays.
Best wishes to the both of you.
PS send us your email address.
Thinking of you so much and sending lots of love xxx