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Latest Update

The bad ….

I’ve had a bit of a crap time. I’ve had headaches, compacted lower bowel, lots of laxatives and suppositories, low blood pressure, almost continuous drip for more fluid, weird coloured urine (looks a bit like real ale). The list goes on. It can grind you down if you let it. I’ve had some bad belly aches and was ultrasound scanned to discover a distended gall bladder. Almost certainly due to the near zero immune system. Fortunately one of the antibiotics I’m having put in via the PICC line is the right one. We have more to learn here I think.

The good …

We’ve been eagerly awaiting our count to start rising, particularly my neutrophil counts as they are what will get us out of here. W’eve been told that once the counts rise enough they’ll shoot up.

See the following Neutrophil table

Monday to Thurdayday: 0%
Friday. 0.01%
Yesterday: 0.34%

I may be at home next weekend.  That would be good.

Busy time

Healthwise I’m a bit on a roller coaster. My white cell count is now down to zero and we’re having to be very careful. I even have a box of masks if I leave my room.

I’ve also seen some falling blood pressure and have had two sets of infusions for platelets and blood. Apparently I get a lot of extra color in my cheeks when I get the extra blood. I wonder when this will catch on in the fashion industry. I’m very thankful for the PICC line which has saved me a lot of needles.

Of course there’s been the excitement of winning our bid on the house we want. It turned out we were one of five who offered the asking price with one of the others also a cash buyer and no chain. We were asked to provide a Best and Final Bid. Helen and I debated this and agreed a new amount. I decided to add an extra £1,000 so the number wasn’t so round. The long and the short of it is we’re now moving on. I’ve got a couple of conveyancing solicitors to interview today and I hope to interview a few surveyors too so we can proceed on our side of things.

The only fly in the ointment is the vendor had a property they wanted to buy nearby but it’s since been sold. We’ll have to work something out here as we can’t leave this open ended.

Offer ….

…. Accepted.

Say no more. (For now)

Offer

This is so boring. And there is no end in sight yet. I have learned I can go home when by cell counts start rising into the safe zone. They haven’t finished crashing yet. I am officially nutropenic now which means I am restricted in what I can eat and I really have to be careful about infections and cuts.

Life does not stop though. Helen went to see a property in Chorleywood. There are some compromises for use, particularly the outside look, but it pushes a lot of buttons. In particular the village of Chorleywood is one of our favourites and the property is located about 5 mins walking distance from the station and town center. So we’ve made an offer which may result in a seller decision by Monday. For now a link to the website and a few random pics Helen took.

http://www.zoopla.co.uk/for-sale/details/29322121

We’ve no idea if our offer will be accepted but we think it’s generous. We only hope the seller doesn’t drag this out as apparently there’s a lot of interest. You will be notified when we know the outcome.

See you in August

Of course, the biggest, recent event has been the visit from New York by Ben and Amy who have been over here for a long weekend. They have spent much of their time just in the hospital room with us in typical family mode – reading, tinkering, random chatting, not a lot. Family time sometimes is almost exactly that, just being in each other’s company and being comfortable. Ben and Amy were also able to spend time out and about, getting a feel for some of the places they may stay when they come and temporarily work over here early next year. Now they can visualize some of the areas they’ve been researching which can only be helpful. They also got to see friends / future colleagues. A good weekend all round. The next time we meet there could well be Wedding Bells in the air. Exciting stuff.