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A Week of Freedom

Goodness me. A lot has happened since I was given my ‘freedom’. First and foremost we’ve been out and about at least once or twice per day. This has had a great effect on moral and my slowly returning strength and fitness. The physio has given up hassling me since she tested me climbing the stairs and had to ask me to slow down. She was worried about me but I think the reality was she couldn’t catch up (she’s more into directing weak patients than climbing stairwells methinks.)

I have been to see our new home. It was bigger than I expected although the room measurements from the rough plans were accurate. Taking up where Helen took off the pictures I took were more closeups than distance shots so I could get detail on things. All looked good.

Big blow when I returned to the hospital that day (Thursday) as it turned out my laptop had been stolen from my room. Much ado since then with insurance companies, police, hospital security and replacement firms. I’m not satisfied with the current replacement by a long shot so it looks like there could be some pain ahead.

Fortunately most of my data is in ‘The Cloud’ now so data loss is contained. I believe I have a backup of all our travel pics but I’ll only know that when I get home.

Helen and I have probably visited all the furniture shops on Tottenham Court Road and have some ideas, some firming up. There is a 2-3 month lead time on sofas which will need some Xmas planning.

Online research has continued in earnest with some things now paid for and ordered (vacuum cleaner, main TV, telephones) and others more or less decided and ready to order soon after we move in (fridge freezer, mower, hedge trimmer, garden tools).

We’ve had a few loans of beds offered which will take the edge off things while we work out the bedrooms which we want to complete soon but nice to have the pressure taken off us.

Back to my health. All my counts continue to improve. I’m still on treatment to deal with the decreasingly obvious side effects from the first round of chemo. Prof Linch has been monitoring my progress while he’s been on holiday and rumours are beginning to build that round 2 of the main fight begins in around a week. I continue to be keen to get moving on the real reason I’m here as the last MRI showed the ‘shadows’ have reduced but not gone and I can feel the neurological effects in my micro-balance.

Bring it on.

Nice to get out, but disappointing movie

We went to Leicester Square to watch the new Superman Movie stopping off via Chinatown for some nibbles. The trip out was pleasant but I wish we could say the same for the movie. It was too long. If there were 10 protracted action sequences it was 12 too many. It was loud. It’s as though the SFX companies now have detailed models of NYC and it’s methods of destruction and here was yet another movie to blow it all up. It’s getting tiresome.

Tomorrow (actually later today because the steroids are working too well to sleep) at 11am I am booked to see our new home. I’ll meet Helen there then we’ll go back into London together. Helen took a few more photos on her last trip and I have a few more planned myself. Will probably put another album together.

Oh Joy That Knows no Bounds

Docs were in this morning. Health improving still. Next round of serious chemo still probably a week or two away but for now I get more time out from hospital. I can go and see our new home. We can do some tourism. Today is Superman Day. Oh real Joy. Furlough each day from hospital (until 6pm infusion each day) while I continue to build for round 2 which I’m keen to start. Bring it all on.

Looking Ahead

Health-wise I continue to recover well from the unplanned/unexpected side effects of round 1 chemo. Drugs are still controlling my lung and liver infections but each day I strengthen. Helen and I went out for a longer walk today looking for something different to eat but only ended up in a Subway. The docs continue to need to keep me in and this state of affairs could easily last until the end of next week whereupon who knows what decision will be made as to a furlogh and/or recommencement of full chemo – round 2. I find wanting the latter to happen but my organs must get their rest.

Blood counts improve daily so time out could be extended soon which will allow me time to travel out and see our new home and both of us to go to the movies in London and sight see. For instance we’re keen on visiting the shard. If worst comes to the worst we can always jump in a taxi and get back to the womb of the hospital quickly.

Things to sort of look forward to.

Another look ahead involves son Sam. His Australia visa is up soon and he has taken the big decision to come back to the UK to study complementary therapy. That means coming to stay with us as the commute from Chorleywood and the college we’ve booked in Harrow is excellent and quite frankly, Sam is probably in need of financial support too.

Sam will be flying back via the US where he can meet old friends and go to Ben and Amy’s wedding. We’ve asked him to represent the family in our absence and are amending what we planned to say ourselves so we can say something similar through him. Not as good as being there ourselves but hopefully this means a maturity step for Sam. He loves to perform so this could just be a slam dunk for him.

We wish him all the best on this. The frustration of dealing with a 23 year old on the other side of the planet is communication which is a bit frustrating for us as we have a lot to work out to get him on his feet in the UK.

One of the tasks I have taken on on Sam’s behalf is to research ways to get work experience after his first intensive training period. To do this I have engaged the complementary therapists here at the hospital which is covered by my insurance. I’ve already had reflexology in my room and have a massage planned nearby next week. Not neglecting our responsibilities we talked to the therapist about networking ideas for getting Sam some work experience which I’ll repeat next week with the massage therapist. Life can be tough.

I really did do it

I did. I submitted Helen and my UK tax return this weekend. I had more excuses to postpone which I used with glee. Friends visited on Saturday (we went out for Sushi nearby) and Helen and I have been out another two times this weekend looking at sofas.

Sunday was filled with Wimbledon and Grand Prix. Andy Murray played a fine match. Helen’s sister Betty and her daughter, our niece Emily, arrived just in time to watch with strawberries, cream and champagne. Our John was here too. As much as I pleaded with the nurse, I was not allowed any alcohol. Oddly enough I’ve not had a drop in nearly 2 months and feel quite good about it.

Healthwise I feel better than I was first admitted. I’m still fighting liver and lung issues triggered by the first round of chemo. This will probobaly stay improving until the docs feel it’s a good time to resume the poisoning.

Today, when Helen gets here, we’ll go out, have lunch and this time it’s bedroom furniture. Incidentally, we’ve almost picked something. I subscribed to Which? and am getting much better reviews. We want a decent mattress for our bed and there is a very economical foam memory foam mattress by SilentNight which we’ll almost certainly get for ourselves. Not a lot for the hours of research but it’s slow and steady that will win the day here – and pass the time.